Pain is the body’s way of telling the brain we are still alive. That’s my story and I am sticking to it.
I have wrestled with the idea of addressing this subject for sometime. I think I can speak for the majority of us who suffer from chronic pain syndrome when I say we aren’t looking for sympathy or pity. We just want you to understand what we are dealing with. Too many think we are overreacting and are just cry babies. I am here to tell you the pain is real and can be relentless at times.
Mine began when I crushed my heel, broke my ankle and instep in 1979. My toes were about the only thing that were spared. The doctor who treated me said he didn’t think I would walk again and if I managed to do so it would be with the assistance of a cane. He was wrong on both counts.
The bones healed but the pain never really stopped. It just got worse. It has wreaked havoc on my quality of life. I have reached a point where all I want to do is sit on my arse and keep my foot elevated to combat the pain.
On those days I force myself to get up, put on my big boy panties and deal with it. Some days are harder than others. The pain is not only physical but emotional as well. I have to fight off depression daily but I can say I have remained victorious in that battle. I get tired of hurting. I try to remember what life was like without pain. It keeps me awake at night and causes fatigue. It becomes a chore just to go to town 3 miles away. Negative thoughts try to creep in but I have learned to keep them at bay with positive thoughts. It can be quite the emotional battle that some days drain me mentally and physically.
Recently I have had to start the day using a cane but once I am up and moving for about an hour and the foot loosens up I can lose the cane. There are mornings that I have to work diligently to get my foot in a boot. The majority of my pain is caused by inflammation and arthritis.
I have enrolled in pain management with little success. I was on hydrocodone for ten years until one morning I got up and took myself off it. It basically just dulled my pain and I was afraid of what it was doing to my body. I wasn’t getting any real benefit from it. I have tried ointments and even used horse liniment that gives short lived temporary relief never completely eradicating the pain.
I contribute my ability to cope with CPS to my love of nature, fishing and kayaking. They keep me motivated to deal with it and to keep on trucking.
I am by no means the only one who suffers from CPS and we all have different ways of combating it. Just please be aware that for the majority of us the pain is real. Our quality of life sucks and we become cranky and hard to be around. We don’t mean to be but the fatigue and pain sometimes become so unbearable we lash out even though it against our better judgement.
No doubt you all know someone who suffers from CPS. Please don’t offer us pity or sympathy. Instead try to understand us and be a positive force in our life. Help us through the rough spots. There are days that an “atta boy” or hug can ease the pain, give us hope and brighten our days. Please don’t judge us just try to understand us.